Learn how you can play an active role in your MS care and treatment from medical experts and community members. The resources below provide insights on why self-advocacy matters and treatment decision-making, key information for people newly diagnosed with MS, and tips to collaborate effectively with your neurologist and care team.
“Sometimes you just don’t know the questions or you haven’t asked yourself yet; that’s why when we go back to resources, it can be so helpful.”
– Jessica, My Krew member
Self-advocacy in ms care
Neurologist Dr. Warren Berger shares his perspective on the importance of open communication and collaboration between people living with MS, their neurologists and care teams, and why self-advocacy matters.
Self-advocacy companion resource
This resource will help you share your goals and questions with your neurologist and care team and prepare to make the most of your appointments.
It’s important to play an active role in your care and treatment decisions through ongoing discussions with your neurologist and care team. This guide outlines key considerations when it comes to aligning your needs, wishes and priorities with your treatment options.
This booklet has been developed to help you inform your doctor, MS nurse and other members of your MS care team about the symptoms you are experiencing. It also explains what an MRI can tell you about your MS.
This tool is meant to cover all the symptoms, some your doctor may forget to ask for. Take the questionnaire, and then share the results with your doctor to discuss and track your symptoms over time.
Learning you have MS can be an overwhelming and confusing time. Registered MS nurse Bonnie Blain answers frequently asked questions and shares her insights into how you can start taking back control from the very beginning.
Visit the links below to access additional resources, hear from more experts in care and Canadians living with MS, get the latest MS news and connect with the community.
How I Navigate Decisions About My MS Care
Trish shares her rules—and advice—for taking charge of life with MS: self-advocacy, close collaboration with your neurologist and choosing the right treatment for you.
What Living with MS Has Taught Me About Advocating for Myself
Jessica, a busy mom and entrepreneur, on her ongoing journey from diagnosis to finding the right treatment plan for every stage of her life.
What Helped One Woman Live Well with Her MS
Being diagnosed with MS can be a confusing, frightening, and lonely experience – but it doesn’t have to be. Sophie Berriault shares her rules of living well with her disease.
Understanding Cognitive Symptoms When Living with MS
Neurologist Dr. Tara Lad and Gaby Mammone discuss the importance of strong relationships with care teams when it comes to managing cognitive symptoms and why there’s reason to be hopeful.
TrackMSWalking App
Designed to assist people living with MS, this app allows you to optimally measure your walking parameters. After tracking your walks, you can consult, monitor and share your results.
MSology
MSology is an information service offering the latest research news on MS, tips on living with the disease, and practical advice to help in making decisions.
MS Canada
MS Canada provides information, support and advocacy to people affected by MS, and funds research to find the cause and cure for the disease.
MS International Federation
The MS International Federation is a global network of MS organizations with 48 members from around the world, and links to many others.
Your message was succesfully sent.